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The British Humanist Association (BHA) has welcomed new guidance by the
General Medical Council (GMC) on end-of-life care.
The guidelines make clear that providing life-prolonging treatment that is
"excessively burdensome" or "disproportionate in relation to the expected
benefits" when a patient is nearing the end of life may not be in the best
interests of the patient and thus not always the best course of action.
The guidance also makes clear that "doctors have an ethical obligation to
show respect for human life; protect the health of their patients; and to
make their patients' best interests their first concern."
BHA Head of Public Affairs Naomi Phillips stated, 'Recognising that life
has an end and that unnecessarily prolonging this natural process can
increase patient suffering is very important. At the same time a good
balance has been struck in the guidance because it advises that doctors
should start from the assumption that life should be prolonged, although
not at any cost, and that patients should be in charge of decisions about
their care for as long as possible.
'Enjoyment of life is what gives life its quality and is of enormous
importance. The BHA's work on the issue of end-of-life care revolves
around the belief that increasing suffering and removing patients' right
to choice in the name of prolonging life should be avoided. We therefore
applaud the new guidance as a positive contribution to this debate.'
[There is information in the Notes section below.]
[There are other related stories in the Links section below.]
[There are stories in the Overflow section below.]
To read the full article click on one of these links, both of which go to the same destination. A short link is provided for the convenience of readers. Also, readers may search and browse past and future advisories on the web (see bottom.)
Britain: Doctors can be stuck off if they ignore the right to die, GMC to announce
[Telegraph]
http://www.telegraph.co.uk/health/healthnews/7742636/Doctors-can-be-struck-off-if-they-ignore-the-right-to-die-GMC-to-announce.html
Excerpts from the Telegraph story:
Doctors could be struck off if they fail to respect the wishes of terminally ill
patients who want to die by refusing treatment, the General Medical Council is
to announce…
They must allow the terminally ill to refuse food and water if the patient
does not want treatment that prolongs their life and must abide by "living
wills" in which patients specify in advance that they do not want to be
resuscitated.
Doctors must also follow the wishes of patients as communicated through a
friend or relative who has been designated their "legal proxy", says the
GMC…
The guidance makes clear that the directives can be ignored only where
there is evidence that a patient may have changed his or her mind. It also
says doctors must respect the wishes of patients who make their feelings
clear verbally, provided they are mentally capable of doing so.
Doctors must not let their own personal or
religious objections
interfere - although they can withdraw from treating an individual patient - and
must seek a second medical opinion before withdrawing hydration and
nutrition.
"BHA welcomes new GMC guidance on end-of life care". politics.co.uk. Thursday, 20, May 2010 02:29. <www.politics.co.uk/opinion-formers/press-releases/health/bha-welcomes-new-gmc-guidance-on-end-of-life-care-137805265873.htm>. British Humanist Association, 1 Gower Street, London WC1E 6HD, UK.
Tags (or keywords) briefly indicate some major topics of the report.
futile care
living will
refusal of treatment
food and water
General Medical Council
Britain
Blogs:
The EXIT euthanasia blog
[EXIT]
http://exiteuthanasia.wordpress.com/
The EXIT euthanasia blog: Keeping up to date on
end of life, euthanasia, self-deliverance and
assisted suicide
The campaign for dignity in dying
[Dignity in Dying]
http://dignityindying.blogspot.com/
Dignity in Dying campaigns to give people real choice and control to
alleviate unnecessary suffering at the end of life. The law is not working
at the moment. We lobby for improved access to good quality end-of-life
care, but this can not alleviate all suffering for every person. Whether a
terminally ill person wants to prolong their life or shorten it, they
should have control over where they die, their treatment options, and
whether they have an assisted death. Within safeguards, terminally ill,
mentally competent adults should not have to suffer against their wishes
at the end of life.
Stories that EuthaNEWSia did not get to:
Living wills not always a good predictor of actual treatment preferences
[World right-to-die news list]
http://lists.opn.org/pipermail/right-to-die_lists.opn.org/2010-May/003882.html
http://www.prlog.org/10687879-living-wills-are-poor-predictors-of-actual-treatment-preferences-at-the-end-of-life.html
This new report is in line with much of the existing research on
living wills and advance directives. Sure, they are better than
nothing! But much of the value depends on how much work the
patient puts into them. There is a communication gap between
what patients think are meaningful instructions and what
actually make sense in many situations that arise - hardly
surprising given the complexity of modern medicine. The
difference between palliative medicine to keep you comfortable,
and heroic life-prolonging measures, is sometimes far from
cut-and-dried. Which should not dissuade you from making
one. When it comes to life and death matters, we all maybe want
every little bit that might help.
Chris Docker
The EXIT euthanasia blog
[Editor's note: Also see the
Advance
Care Study in the May 14 EuthaNEWSia, which found
that after nurses intervened to document end of
life wishes, "It was determined that of 25/29
patients who died in the intervention group,
wishes were documented and followed versus 8/27 in
the control group."]
Connecticut: Extending life no favor for some?
[New Haven Register]
http://www.nhregister.com/articles/2010/05/19/opinion/mmarks_518051910.txt
Joel Marks writes about "a longtime friend who, as I write, is facing a
prolonged dying in 'the American way.'
She is a virtual prisoner of what, echoing President Dwight D. Eisenhower,
one might call 'the medical-religious complex.'" Marks' friend
is slowly dying in her hospice bed. An extract from his OpEd:
Furthermore, a mutual friend explained to me, my dying friend's end will
likely come about by the failure of some internal organ as her illness
continues its Sherman's march through her insides. So, in the benevolence
of not-killing, the medical professionals are standing by while my
friend's own body does the dirty work for them at a time of its choosing,
not my friend's, and in a manner that could bring its own ghastly form of
suffering.
My friend said, "I hope this goes quickly" and "I only want to know what's
going to happen to me." She was not talking about the afterlife, but the
day-to-day uncertainties of her terminal existence.
These would not be issues if assisted suicide were an option. As things
stand, the system is obliging my friend to undergo mental torture, if not
physical torture. They might just drug her some more to make her feel
better. Yes, I suppose you could say she is depressed; but why shouldn't
she be? What, really, is the point?
Canada: Let Robert Latimer free - now
[Canada Free Press]
http://canadafreepress.com/index.php/letter/23357
LG. Anderson writes about the Canadian Parole
Board's treatment of Robert Latimer, starting with:
I find it that ‘Only In Canada’ will you find a parole board so
tainted, so confused and so unaccountable that I cannot find the
words to describe my feelings.
Disclosure that the sex offender and rapist, Graham James was
released from prison three years ago by the parole board stunned
the public {James was sentenced to 3 1/2 years in prison in 1997
after he pleaded guilty to sexually assaulting Kennedy and
another unnamed player about 350 times over 10 years.}.Meanwhile,
Robert Latimer literally rots in jail. (Over 10 years.)
USA: Suicide Risk May Be Higher in Senior Facilities
[HealthDay News]
http://news.yahoo.com/s/hsn/20100518/hl_hsn/suicideriskmaybehigherinseniorfacilities
Seniors living in assisted-living and
long-term care facilities may have a higher rate of suicide than those who
continue living in their own homes, suggests a new report.
People over 65 commit suicide at a rate of about 14 per 100,000 people,
but in a study of Italian people living in long-term care facilities,
researchers found that the rate of suicide was nearly 19 per 100,000
people.
One reason may be that stressful or troubling events — such as death of a
spouse, illness or a decline in physical function — may underlie the move
to a residential care facility, the researchers say.
"The risk of suicide may be heightened during the first year," said the
report's lead author, Carol Podgorski, an assistant professor of
psychiatry at the University of Rochester in New York. "There's relocation
stress, and that's when they're dealing with whatever caused them to
move."
The report was published online May 18 in the
journal
PLoS Medicine.
Actions Speak Louder than Words - Providing Inappropriate Treatments
[Medical Futility Blog]
http://medicalfutility.blogspot.com/2010/05/actions-speak-louder-than-words.html
On Sunday in New Orleans, Robert Fine and I did a pro-con debate on the
Texas Advance Directives Act during an ethics session of the American
Thoracic Society. There were around 150 people in attendance. One
particularly telling moment was the following.
Bob asked who thought that a PVS patient should be dialyzed. Almost
nobody raised a hand. He then asked who thought a severely demented
patient should be dialyzed. Again, almost nobody raised a hand. Bob
finally asked (perhaps wondering if the audience was participating) who
has done it or seen it done. A majority of physicians in the room raised
their hands. There is your standard of care.
Scotland: Shattered family demand probe into dad's helium overdose suicide
[The Daily Record]
http://www.dailyrecord.co.uk/news/scottish-news/2010/05/16/shattered-family-demand-probe-into-dad-s-helium-overdose-suicide-86908-22262624/
Jack Fox, 44, of Gairloch, Wester Ross, used helium
inhalation to commit suicide, and his family want a criminal
investigation launched. A search of Fox's computer revealed
that he had viewed the Exit International web site, and had
ordered helium cannisters from England.
The humanist case against euthanasia
[spiked]
http://www.spiked-online.com/index.php/site/article/8887/
Brendan O'Neill, an atheist and radical humanist,
writes of his opposition to voluntary euthanasia:
There are two reasons why, as someone driven by a human-centred
morality, I am uncomfortable with legalising assisted
dying. Firstly, because it will be bad for the people it is
supposed to help: terminally ill people who want to die. And
secondly, because it will also be bad for those people who want
to live, people who might be sick or disabled or old but who
want to continue living.
Canada: Euthanasia foes are the ones who "play God"
[London Free Press]
http://www.lfpress.com/comment/2010/05/14/13954466.html
Goldwin Emerson writes about the difficulties in
discussing euthanasia as a political issue, and
how "it seems to me that it is my anti-euthanasia
adversary who claims expertise on how God thinks."
The concluding paragraphs:
I want to know the patient is freely choosing death rather than choosing
prolonged and painful illness. I recognize that built-in safeguards are
required in order to ensure euthanasia is what the patient has really
desired over an extended period of time. But in these difficult decisions,
it is the patient and her or his doctor who can best decide, and not
relatives or "friends" or others who might stand to gain financially.
In the end, it is of little value for organized religion, the legal
system, my anti-euthanasia opponent or myself to "play God" in these
serious decisions.
Ireland: Exit International to set up Irish group
[sbpost.ie]
http://www.sbpost.ie/news/ireland/euthanasia-body-to-set-up-irish-group-49289.html
Exit International, the controversial
pro-euthanasia organisation, is setting up a
group in Ireland. The first advocacy group of
its kind in Ireland will be headed by Dublin
man Tom Curran.
Curran said the association in Ireland would
be a source of information and support to
people interested in learning more about
euthanasia and assisted suicide. He said
people had a right to access
information.
Curran's partner had multiple sclerosis
and, as her condition had become progressively
worse, he said they had discussed options such
as assisted suicide and euthanasia.
Curran said the group was very much in its infancy, but planned to
hold its first meeting before the end of July. He said he became
involved with Exit International after attending a meeting held by
Dr Philip Nitschke, its founder.
Final Exit book updated for 2010
[Assisted-Suicide Blog, Derek Humphry]
http://assistedsuicide.org/blog/2010/05/14/final-exit-book-updated-for-2010/
Updated Book - Final Exit 3rd edition 2010
There is a new, updated printing of ‘Final Exit: The Practicalities of
Self-Deliverance and Assisted Suicide for the Dying’ by Derek Humphry. Now
in print for its 20th year, this volume remains the gold standard for
choice in dying books. It has been translated into 12 languages.
Price of the English-language paperback remains at $17 USD plus $6
shipping.
Price of the digital download ebook is $25 USD.
This printing contains factual updates and new addresses, BUT DOES NOT
CONTAIN ANY NEW WAYS OF SELF-DELIVERANCE. (I wish it did!) If you already
have the 3rd edition (2002) plus the Addendum you do not need this new
printing.
The EuthaNEWSia ID for this advisory is: enid201005212019.
Mailed: Friday, May 21, 2010 14:31:16 -0600
at Saskatoon, Saskatchewan.
EuthaNEWSia is a free Canadian news advisory service covering end-of-life issues such as right to die, assisted suicide, and euthanasia. EuthaNEWSia is produced by the Right to Die Society of Canada which works toward a good death for all, including open, regulated and equitable access to euthanasia and assisted suicide. The editor is Michael Dawson <editor@euthanewsia.ca>.
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