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This report begins:
Even at a hospital recognized for managing seriously ill patients, a
systematic assessment of clinical measures associated with end-of-life
care identified opportunities to improve treatment for those dying in the
hospital, according to a report in the June 28 issue of Archives of
Internal Medicine, one of the JAMA/Archives journals.
Medical care during the last year of life accounts for 10 percent to 12
percent of the U.S. health care budget and 27 percent of Medicare
expenditures, according to background information in the article. "Despite
this intensive resource use, studies suggest that when lifesaving
treatments are unsuccessful, hospitalized patients often die with
distressing symptoms," the authors write. "Studies of patients who died in
the hospital find that pain, dyspnea [trouble breathing] and restlessness
or agitation are prevalent before death. Furthermore, persons dying in the
hospital often receive burdensome care immediately before death that may
not match patient preferences."
[There are other related stories in the Links section below.]
[There are stories in the Overflow section below.]
To read the full article click on one of these links, both of which go to the same destination. A short link is provided for the convenience of readers. Also, readers may search and browse past and future advisories on the web (see bottom.)
Last-Ditch Efforts Can Drag Out Suffering
[Medical Futility Blog]
http://medicalfutility.blogspot.com/2010/07/last-ditch-efforts-can-drag-out.html
Professor Thaddeus Pope writes:
The following statistics are well-known among ethics,
palliative care, and critical care professionals. I am glad they
are
being
reprinted in newspapers across the country. "More than 80
percent of people who die in the U.S. have a long, progressive
illness such as cancer, heart failure or Alzheimer's. More than
80 percent of them say they want to avoid hospitalization and
intensive care when they are dying, according to the Dartmouth
Atlas Project, which tracks health-care trends." Yet that's not
what is happening:
"The average time spent in hospice and palliative care, which stresses
comfort and quality of life once an illness is incurable, is falling
because people are starting it too late. In 2008, one-third of people
who received hospice care had it for a week or less, says the National
Hospice and Palliative Care Organization."
"Hospitalizations during the last six months of life are rising: from
1,302 per 1,000 Medicare recipients in 1996 to 1,441 in 2005,
Dartmouth reports. Treating chronic illness in the last two years of
life gobbles up nearly one-third of all Medicare dollars."
"People are actually now sicker as they die," and some find that
treatments become a greater burden than the illness was, said Dr. Ira
Byock, director of palliative care at Dartmouth-Hitchcock Medical
Center. "There are worse things than having someone you love die," he
said.
Sooner or Later: Restoring Sanity to Your End-of-Life Care
[Medical Futility Blog]
http://medicalfutility.blogspot.com/2010/06/sooner-or-later-restoring-sanity-to_27.html
Thaddeus Pope reports: Damiano de Sano Iocovozzi had the
following post at the AMA Facebook page a few days ago:
At present, the USA is still spending 25% of the health care dollar
on medical futility for those insured and uninsured patients who can no
longer benefit from critical care anything in the nation's ICUs. What
normally happens is this: as a patient's disease progresses or is
deteriorating due to old age, an ambulance is summoned. Without an
advance directive, the patient may get intubated, placed on life
support, maybe he is coded, transferred to intensive care where an
expensive but futile fool's errand begins and costs about $10,000 per
day. A steady stream of specialists marches in and out of the room 24/7
ordering a la carte a list of medically futile diagnostics, therapies,
respiratory care orders, advanced pharmaceuticals, maybe a trip to
surgery or to the cath lab, critical care nursing and more specialists.
As time goes on and the patient's disease continues to deteriorate his
status, a hospital-acquired infection sets in, kidneys shut down,
dialysis begins, more blood draws to measure levels of heavy antibiotics
that will not cure, help usher a remission or a reprieve from old age. A
new rush of drips is started to keep the blood pressure stable as the
bacteria proliferate. Usually death is preceded by another code blue
where the poor unfortunate is literally shocked on the thorax, given CPR
and the worst part, cannot even get to say good bye due to a large tube
from mouth to lungs…
Mr. de Sano Iocovozzi is promoting his new book, Sooner or Later:
Restoring Sanity to Your End-of-Life Care.
"Review Of Dying Patients' Charts Identifies Need For Improvement In End-of-life Care". redOrbit.com. Posted on: Wednesday, 30 June 2010, 09:28 CDT. <www.redorbit.com/news/health/1886486/review_of_dying_patients_charts_identifies_need_for_improvement_in/>. RedOrbit, Inc., headquartered in Texas, was founded in November 2002. Tel: 214-739-9580.
Tags (or keywords) briefly indicate some major topics of the report.
end-of-life care
futile care
medical treatment
U.S.A.
Stories that EuthaNEWSia did not get to:
The Associated Press: Correction: Germany right-to-die story
[The Associated Press]
http://www.google.com/hostednews/ap/article/ALeqM5jdo0vCHstOuVPeqVb08e4nbHWHEAD9GN2QK81
BERLIN - In a story June 25 about a right-to-die case, The Associated
Press reported erroneously that Germany's top criminal court legalized
assisted suicide. The court didn't rule on the issue of assisted suicide.
The case involved a woman in a vegetative coma who was being kept alive
through an intravenous feeding tube, though not terminally ill. The court
overturned the attempted manslaughter conviction of a lawyer who had told
the woman's daughter she could remove the tube from her mother. The woman
had previously said she did not want to be kept alive under such
circumstances.
South Korea: Patients, families asking for death with dignity
[JoongAng Daily]
http://joongangdaily.joins.com/article/view.asp?aid=2922650
This is a progress report explaining how the new death
with dignity guidelines are being applied in the past
year. There are five basic requirements for the
suspension of life support: chances of recovery were
negligible, doctors were unable to alleviate pain, it would be
meaningless to maintain the patients condition, the patient's
quality of life is low and the
hospital expenses are overly burdensome for the family.
DNR requests are up by 25%. Since the guidelines came into
effect last July, about 46 patients have died after having life
support suspended.
Switzerland: Dignitas boss: Healthy should have right to die
[BBC News]
http://news.bbc.co.uk/2/hi/europe/10481309.stm
This report begins:
Ludwig Minelli, the head of Dignitas, is 77. A trained lawyer, he founded
the assisted suicide organisation 12 years ago.
The organisation, whose slogan is '"live with dignity, die with dignity",
has helped over 1,000 people to die.
Many of them are people who have travelled to Switzerland because assisted
suicide is not permitted in their own countries.
Dignitas has the status of an association under Swiss law, with two active
members, Mr Minelli and one other.
The identity of the other member has not been revealed.
These two active members control the policy and financing of Dignitas.
The report ends with:
Q: Can I ask you about the Dignitas philosophy on people who would come to
you who are mentally ill rather than physically ill? Why you think it's
okay to help someone with a major mental illness like schizophrenia to
commit suicide?
A: As a human rights lawyer I am persuaded that the right to make an end of
life decision belongs to every person who has capacity of discernment,
most persons with mental illness have full capacity of discernment, of
course. And I think this capacity to make an end of life decision should
also apply to a healthy person, so the British discussion about terminally
ill persons is completely obsolete. And I want to implement this last
human right.
Q: What if someone came to you who was neither physically nor mentally ill
but expressed the wish to die. Would you be able to help them?
A: Of course. For instance a very old person which has no illnesses at all,
has some difficulties because in old age you will have some difficulties,
has no longer family, has no longer friends. Why should we say no?
Switzerland: interview with Ludwig Minelli of Dignitas
[BBC News]
http://news.bbc.co.uk/2/hi/europe/10461894.stm
Ludwig Minelli explains how Dignitas goes about
its work. He confirms that Dignitas will not
release financial information, saying it is a
private organization that is not legally compelled
to do so. Also interviewed is Dr Alois Geiger,
who was the prescribing physician for paralysed
Briton Dan James. The report suggests that
"any change to existing Swiss law is likely
to be a long process."
Oregon: Editorial: "Dignity" law could use fix
[democratherald.com]
http://www.democratherald.com/news/opinion/editorial/article_2245259c-83ae-11df-a029-001cc4c002e0.html
The editorial is about last week's EuthaNEWSia story,
Oregon:
Death with Dignity house planned, and starts
with: Last week's story about a Portland
psychiatrist may revive the debate on assisted
suicide in Oregon. If so, it might lead to
improvements in the law, which now requires people
to do the act without anyone helping them.
Dr. Stuart Weisberg wants to establish a business where people can go to
make use of Oregon's Death with Dignity Act. But under the law, lack of a
place is not a problem. And only people who are residents of Oregon may
make use of the law - so a "death house" for tourists would be
pointless.
The editorial suggests that a facility like Dignitas would be
useful in Oregon, filling a need which is now not met.
Most Czechs Agree with Euthanasia
[Angus Reid Global Monitor]
http://www.angus-reid.com/polls/view/35684/most_czechs_agree_with_euthanasia
(Angus Reid Global Monitor) - Most people in the Czech Republic support
the practice of euthanasia, according to a poll by CVVM. 61 per cent of
respondents share this point of view, down one point since May 2009.
In the Czech Republic, assisting a person to commit suicide is equivalent
to murder.
Euthanasia has been extensively discussed in the Czech legislature for
years, but no changes in the status quo have been approved.
Connecticut: No appeal by Compassion & Choices
[New Haven Register]
http://www.nhregister.com/articles/2010/06/26/news/aa3ctsuicideend062610.txt
Kathryn Tucker, lawyer for Compassion & Choices,
announces they will not appeal the Superior Court
dismissal of their lawsuit to permit doctors to
assist suffering patients to die.
Montana: Oregon death-with-dignity advocate discusses details of law at UM
[The Missoulian]
http://missoulian.com/news/state-and-regional/article_01071182-833c-11df-9ec6-001cc4c002e0.html
The report begins:
"We imagined that we would have people lining up at the borders," said
Barbara Glidewell, who served as Oregon's first patient adviser under the
state's death-with-dignity act. "… That didn't happen."
Glidewell, a bioethicist and faculty member at Oregon Health and Science
University, spoke Monday to a group of about 30 at the University of
Montana. The talk was sponsored by Compassion and Choices, an advocacy
group that promotes death with dignity.
Unite Against Euthanasia, Group Tells Quebecers
[Epoch Times]
http://www.theepochtimes.com/n2/content/view/38304/
This story begins with:
EDMONTON-A newly formed grassroots group has launched a campaign calling
on Quebecers to oppose euthanasia and assisted suicide from being brought
into the province's health care system.
"We thought we would need to have a group that would really represent an
option different than the one that is proposed by the euthanasia lobby,"
says Dr. Andre Bourque, president of Vivre dans la Dignite (Living with
Dignity), a non-partisan, non-religious group focused on end-of-life
issues.
The group plans to make a submission to a travelling parliamentary
commission that will hold hearings in late summer or early fall to get the
views of Quebecers on the issue. One of the group's key arguments is that
euthanasia and suicide are killing and as such shouldn't be "confused with
health care."
Another excerpt:
Dr. Bourque says legalizing euthanasia would be a "foot in the door" to
opening and expanding a practice that will place vulnerable patients in a
dangerous position.
"There will be lives taken without their consent, there are people who
don't want to die who are going to die, and there are going to be
decisions taken by third parties for people who have not asked that their
lives be shortened."
Free copies of "Final Exit" for American libraries
[World right-to-die news list]
http://lists.opn.org/pipermail/right-to-die_lists.opn.org/2010-June/003941.html
Derek Humphry writes:
As I've reported on this ERGO news list before, a supporter bequeathed a
large sum of money so that ERGO could distribute complimentary copies of
the book 'Final Exit' to US public lending libraries now that their
acquisition budgets are being cut so severely.
We now have a web site up by which a library may ask for a free copy.
http://www.finalexitforlibraries.com/
If you know people in the library field, or have contact with your local
library, please tell them of this remarkable site.
We are already in the process of distributing hundreds of copies to
libraries.
The EuthaNEWSia ID for this advisory is: enid201007020868.
Mailed: Friday, July 2, 2010 14:20:04 -0600
at Saskatoon, Saskatchewan.
EuthaNEWSia is a free Canadian news advisory service covering end-of-life issues such as right to die, assisted suicide, and euthanasia. EuthaNEWSia is produced by the Right to Die Society of Canada which works toward a good death for all, including open, regulated and equitable access to euthanasia and assisted suicide. The editor is Michael Dawson <editor@euthanewsia.ca>.
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